This past week has been a struggle as on Tuesday I came home with Kenzie while Cyndi was still at work and Kaitlyn at school. As soon as we got inside Kenzie went unresponsive and shortly thereafter started seizing. Needless to say a short ambulance ride later we were at Maine Medical Center. After spending a few hours there and several lab tests we were discharged. It is believed the seizure was brought on by a high fever Kenzie developed. With Kenzie's condition apparently colds, lack of sleep, and some other things can make her more susceptible to having a seizure. For now her seizure meds have been increased and her fever or cold seems to have finally fully left her yesterday.
In other news Kenzie's blood work from her full genome genetic workup came back Friday. It showed no clear findings. There were 2 maybes found though that would require further testing. One is a nuclear DNA cell. It seems unlikely but is showing 2 pairs hence maybe a cause. For this one Kaitlyn would need to be tested to see if she has the same pairs. If she has them then thst finding would be insignificant because Kaitlyn is healthy. The other maybe is a mitochrondial cell which shows only 2 percent affected. For this to be checked further most likely a muscle biopsy would need to be done. All of this information thus far has been delivered only by the local geneticist office. We are waiting for Dr Rodan in Boston to get and analyze the results. Once he contacts us we will have a clearer view of what the next course of action is. We would much rather have any further testing done in Boston.
So really still no clear answers at this point. We will send another update next week after Dr Rodan calls. Thank you all for your continued prayers.
Sunday, May 14, 2017
This morning despite the yucky rain and cold, Kaitlyn and I participated in the Sea Dogs Mother's Day races. Kaitlyn did the Kids Fun Run and I did the 5K. The crappy weather must have motivated me, I shaved over 3 minutes off last years time although I was less prepared!
Saturday, May 13, 2017
Kaitlyn has had a busy past few weeks. It started out with the Girl Scout Father Daughter Dance. The theme was the beach. Luckily, we had an unseasonably warm day.
For the past two years, Kaitlyn has been attending monthly sacramental prep classes ahead of her First Communion and Confirmation. This month's was her last formal retreat. Some of the parishioners make "Blessing Cups" for the kids as gifts. Each one is unique. Kaitlyn was so excited to be presented with hers.
On Tuesday, Kaitlyn's class led the prayer service and May crowning for Mary. Kaitlyn did so well reading in front of everyone!
On Wednesday, Kaitlyn had her first cross country meet. I'm not sure if they measured the course wrong or if Kaitlyn got significantly faster!
And today was her dance recital!
Sunday, April 23, 2017
I had a great weekend with the family celebrating my birthday. I got to sleep in til almost 9! Kevin and Kaitlyn took me to the mall. We stopped in Pandora where I picked out a new charm for my bracelet. Then Kevin let me indulge in my love of shoes! ❤
Please ignore the size of my massive feet, hahaha.
Grammy was awesome and watched the girls, so Kevin could take me out for dinner! We went to The Grill Room. They have an open kitchen and cook everything over a wood fire. Plus they are one of the only restaurants in Portland that serve my much-loved escargot! We had to document the massive mound of fries that came with Kevin's meal. The picture really doesn't do it justice. He couldn't even finish half of them!
I'm usually not to big on selfies, but considering I wore a nice dress and high heels for the first time in about a year AND did my hair and make-up I thought it had to be documented.
Kaitlyn picked out the cake... can you tell? It's chocolate cake with chocolate icing and massive globs of balloon icing. Amazingly yummy!
My best present of all though...
That's right! Our family has grown again. We are back up to our full contingent of cats. We first met this big boy when Kaitlyn's troop took a tour of the Animal Refuge League. We immediately felt drawn to him and his personality and have been thinking of him for weeks. Yesterday afternoon we went to the shelter to ask a few questions about him and determine if he would be a good fit for the family. He's between 5 and 8 years old. He'd been in a shelter somewhere north of Portland since September last year. They no longer had room for him and shipped him down to the shelter here in January. He was in rough shape when he arrived. He had coat issues, needed a dentistry, and had a respiratory issues. Most of those problems are completely gone, but the shelter says he has chronic respiratory problems. Basically he sneezes and wheezes a lot. It sometimes sounds bad, but he's fine and it's not contagious to the other cats. Kevin and I believe it's why he's been in the shelter so long. He's the most loveable guy. Many of the volunteers were talking about how he was their favorite and all of them came to say goodbye when he was ready to leave with us. His shelter assigned name was "Clyde", but we have re-christened him Stormy.
Stormy has settled in nicely. It's the easiest transition we've had with a new cat transition. He and Frozen are having fun playing with each other now that Frozen is coming to terms that he will not be top cat in the household. Of course, Stormy's coloring makes it difficult to find him sometimes...
Sunday, April 16, 2017
Happy Easter everyone! We hope everyone had a great day, we sure did! It has been crazy-warm up here all weekend and we definitely took advantage of it. Our celebrations started yesterday with an Easter Egg hunt at church. Kenzie was not into it at all. I did most of her collecting. I think she was too distracted by all the people. I managed to get a picture of the one egg she touched.
Of course, after the girls went to bed, the Easter Bunny came!
Then of course it was time to get ready for church.
After Mass, we headed home. Kaitlyn took a quick peek at her Easter basket and Kenzie had her Easter Egg hunt. This one, she loved. She crawled all over her room finding them!
After lunch we went back home. Kaitlyn had her egg hunt. Then the girls explored their baskets. Even Frozen got in on the action!
Saturday evening we dyed eggs. I let Kaitlyn pick out the kit, but stupidly did not fully read the directions. It was VERY messy. Kaitlyn bailed on the process after just one egg. After just a few, we decided not to keep going with the golden sheen and just dyed them regularly. Next year, I will read every word on the box!
Of course, after the girls went to bed, the Easter Bunny came!
For breakfast this morning, I tried my hand at bunny pancakes. I am definitely no artist, but Kaitlyn was impressed. Although she may have been more impressed by the three chocolate eggs she got to eat for breakfast. Mysteriously the Easter Bunny did not use the whole bag to stuff the plastic eggs and left a few for Mommy and Daddy...
Then it was time to go meet Great Uncle Perry, Great Aunt Lorri, and cousins Dan and Kyle for lunch. They were visiting from Northern Maine. And of course Mammy was there too. After we ate, one of the waiters taught Kaitlyn a pretty cool trick. It's hard to see in the pictures, but there is a toothpick stuck in a cork in the bottle. Kaitlyn was able to balance a toothpick holding two forks horizontally on top of the first toothpick. Needless to say, we were all pretty impressed! And I think Kaitlyn was a little shocked she did it!
Kaitlyn and I also decorated cookies together.
And yes, she's wearing my old Wendy's apron!
We wrapped up the day with goodies from our favorite bakery. We go here a few times a year for special treats.